Can the family remove any of Paul's services?

Yes!!!



Now how do we do that...



Working with the plethora of services (plethora isn't that a great word just rolls off the tongue) that deal with disabled clients can be a complete mind boggling, heart wrenching and exasperating experience.

We could just fire any that oppose our wishes for Paul. (firing range comes to mind)

Lobotomy? Hmmm it's a thought. (Wink wink)

Currently, our family concern is about the case manager for the state. She started out decent a few years back but now is simply doing all she can to push her agenda and avoid or undermine the family, which has been causing major issues for Paul. Mom and I feel she needs to be replaced. Anastasia however, feels she needs to lose her job. Uh Oh.

Honestly, there are numerous options to choose from.

First, the family (aka guardians) need to be in agreement.

Second, the "spoke" person...in this case Mom or I (Anastasia needs to take some time to heal herself as she is very sick and this only makes it worse).

Next is to decide the "HOW" and the "WHEN"

Fourth, find out who the Case Manager's Supervisor is. As guardians it is important to know we have every right to terminate services or people that are not working for Paul or with the family in his care. In this case there is a new supervisor the one we know is no longer in position. This came as news to all the family. (typical)

Finally, talk with the new Supervisor and determine the next steps of termination of Paul's current "Case Manager" and talk about other options. This I feel needs to be done in person so that the family's 'spoke person' can get a feel for the individuals who will be involved in the management of Paul and his services.




As for my sister and her desire to have the current case mngr lose her job with the State. Well...she can go there and I am not saying there isn't a case for that however, I feel that once she is gone then we can move forward with Paul and his care. I have no time for lawsuits personally. There are so many other things to concern ourselves. (Have to realize that each person involved with an individual's care has the right to pursue whatever they wish or deem is important--aka control of their own agenda)

I believe that KNOWLEDGE is POWER. It places one in a position of equal footing with all the services that deal with Paul's care on a day to day basis.

My steps are simply the following:
ASK!!!!
READ!!!!
SEEK OUT INFORMATION!!!
DISCUSS OPTIONS!!!!
CHOOSE PATH!!!!
DECIDE TO ACT!!!!
ACT!!!!!!!!!!
(repeat as necessary)

Semi-Annual Meetings

Am sitting in on the Semi-Annual meeting for Paul. Mom is conferenced in on the phone with me, Anastasia is there and being the Voice and all of those interested parties' representatives are present.

The TRUTH is that as you look closely at this picture both chickens are on the "Other Side" relate that to Paul, the Family, and His Services being on the "Other Side" and trying to push or pull each other to their side.

It's an impossible task!

For Ex. Paul's Life Insurance. Being a disabled ward of the state Paul can have life insurance but it is only used for his death expenses. There is no cash value, no interest, NOTHING but to take care of his funeral and burial expenses. The State has been against this from the beginning as it is about $70-$80 a month. With Paul not working he has less money so money has been tight. They want and need that money for food and daily supplies. The issue is simply that the State and Paul's services are not communicating with the family. Basically, they are on their side of the road and we are on the opposite side hollering at each other and everyone forgot their megaphones!



It is a real blame game going on. Stacey is trying to coach everyone, the state is trying to control everyone and accepts no blame, his services are just trying to get by and be supportive, Mom and I are just listening.

As the saying goes...Why do today what can be put off until tomorrow. OR Time is a great regulator of the truth.