Tuesday, January 13, 2015

Tangled web

I love miscommunication. It ALWAYS happens when dealing with care services. Throw in a few spontaneous incidents between the "sporadic bull in a china hut" sister and a "non-native English speaking" caregiver and all of a sudden all hell breaks loose within his services.

I knew I should have talked with Mary (supervisor) after talking with the coordinator over Anastasia's visit with Josie(caregiver) about my sister's couch and art canvas. Heather(coordinator) talked with Mary and this is what Mary heard. 'Anastasia will be taking the couch she brought to Paul's apartment. If she takes the love-seat, which was bought by Paul, then this was not to happen and a call to Adult Protective Services was in order?'

Mary sent this to everyone in Paul's Service planning team, including me.

Of course I had to respond!

My sister has not learned that she needs to make arrangements with his caregivers for adding or taking away things that are in Paul's apartment. These people are there, usually, to protect Paul's interests and home. They would be threatened and concerned if family members, they do not know very well, start talking about taking things. There is a proper way to handle this. She did not follow it and had no instinct to do so. Her thinking is simple: it is hers and she will take it when she wants.

However...

My feathers are DEFINITELY in an uproar over the threat of calling Adult Protective Services on my sister for anything!

To even think for one minute that these people, who are paid to take care of Paul a few hours each day, have any right over family who are there because we love Paul and have his back...simply need to be "dressed down" or straightened out!

I wrote back, and included a few other key people that I feel need to be brought into the discussion, and addressed three issues.

1. The couch is my sisters and she can have it whenever she needs it.
2. This caregiver, Josie, is over stepping her job duties when she thinks she has a say in how any of Paul's family talk to Paul or in handling his care. All his caregivers need to be told the role of Paul's family.
3. We can discuss Adult Protective Services and the role of the family in Paul's care at our meeting Feb 4.

I finished by saying that for them to even imply that Paul's family would harm or do anything to hurt Paul was completely off the mark and shame on them for even considering such a thought.

We will ALWAYS be there and ALWAYS have his back and are the ones who have stopped the neglect and abuse that his previous caregivers have done.

I forewarned Mom. She will receive calls I am sure. LOL

I knew, deep down, that my lil' sister would stir the pot. She doesn't know how to work with the services for people in Independent/Semi-Independent/Dependent care. She tries to run them like a business, but I have learned that the ones who work with the disabled are a very sensitive lot and things need handled direct but with extreme care as to proper procedures and follow through.
She wove a web that is completely tangled and it is up to the other two guardians, Mom and myself to get it untangled.

(BTW: My email was re-wrote several times until the proper tone was written. I am rather vocal myself..teehee) --> Direct, honest with clear intentions and direction.

Should be fun to rebuild the missing links in the web of care around Paul. LOL








Ironic that: Paul has care services that really do care.

Maybe a bit too much...another blog.

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